All my faculties are slowly getting worse. I can’t hear as well, and it’s embarrassing to keep saying, “What?” like a, well, like an old lady. I can’t smell or taste quite as well as before. I’d never win a wine tasting contest, not that I would have before, and I worry whether my perfume is too strong and I just don’t realize it. But what’s really frightening is losing my sight.
Now I’ve never had good eyesight. I got glasses when I was six, after an incident in the classroom made it obvious there was something wrong with my vision. I got contacts at 17 and went back to glasses in my 30s. After 60, doctors started commenting that I was getting cataracts. No surprise, most people get them and they’re easily fixed. So finally last year I decided to have them corrected, and that’s when things started getting scary.
First, I’ve long had astigmatism in one eye. That had gotten much worse over the years, and in recent months my right eye had gotten almost useless. Then, when I went to the big clinic to be assessed, it turned out I had ocular rosacea. That was a surprise, since I didn’t have it anywhere else. The next diagnosis was “ripply corneas,” a condition I can’t find in the medical books but that seems self-explanatory, and finally I was told I had Salzmann’s degeneration, in which small opaque nodules form in the corneas, obscuring vision. As if that weren’t enough, I have a genetic condition in which my tears react chemically with the tissues of my corneas and cause scarring. And so I had A Procedure.
The procedure is called a phototherapeutic keratotomy, or PTK, in which the doctor manually removes the epithelium (i. e., scrapes off the front of the eyeball with a little thing like a potato peeler) and then uses a laser to remove the damaged part of the corneas. It sounds awful, but in practice it’s painless and interesting, and immediately I could see better. The second one was planned for a month later.
My vision kept improving and stabilizing in my right eye, and after a week I had to get new glasses. They’re single-vision lenses and were shockingly cheap compared to the progressive lenses I’d been wearing for many years. Life was good, and I waited eagerly for a month for the second procedure.
That’s when things started going off. The second time was not like the first. The operation took twice as long, and the surgeon commented several times on how thick the scar was down the middle of my cornea. But I wanted those great results.
I didn’t get them. After the surgery, I could barely see out of my left eye. Everything was blurry and cloudy. I blinked a lot but nothing helped. After four days, I went in to have the bandage contact removed, but it was decided to replace it with a second one. The doctor remarked that my eye was not healing as fast as the first one had. No kidding.
It has now been 11 days since The Second Procedure. The contact is out, and the doctor says the subtle healing can now begin, a phrase I rather like. But the healing is proving to be too subtle. The cloudiness has mostly cleared up, but my vision is worse than it was before. With or without my glasses, everything is very blurry, to the point where I’m not using that eye at all. I have neither distance vision nor close vision. And that was my good eye!
I’m due to have cataract surgery in less than three weeks, but I’m afraid to have it done. What if something goes wrong? My right eye is better than it was but still bad, and my left eye is terrible.
So I’m thinking a lot about losing my vision. I live alone in a tiny town half an hour away from most amenities. What if I can’t drive? I don’t see how I could move; I have no money and no equity in my home. I have two dogs and a cat, so I need a house with a yard. I live in an expensive part of the state, relatively speaking, but my family and friends are here, and my job, and my history.
At this point, I’m capable of driving but I no longer enjoy it. During the usual activities of daily life I’m very aware of my poor vision; at work I have to ask someone else to read the schedule posted high on the wall; and reading, the greatest pleasure of my life, is tiring and makes my eyes hurt. It’s frightening and discouraging, and I feel helpless to do anything about it. I don’t know what’s coming next.